Please support Shawn…Update too!
Posted by Sanya | Posted in Uncategorized | Posted on 27-05-2009
Sorry for the delay in updating. I took Shawn in to see Dr. Raj on Tuesday as he is still having trouble with vomiting and has broken out with a rash on both legs. Dr. thinks they are both chemo related. The Zantac seems to be helping. Hoping it stays that way.
Dr. Raj said that he was glad about the MRD results (0.014) and talked with the study chair. They both agree they really don’t know what to do with the results. They just don’t have the data or studies to back it up. So he is emailing other oncologist through out the country and will let me know what they decide to do. Most likely won’t hear anything until the next bone marrow which will be done about 4 weeks after the next round of chemo is started. He should start that round mid March. Dr. Raj also said that Shawn is on some pretty heavy duty chemo as it is.
As usual… a constant roller coaster. Will update as we find more out. Shawn goes back for more chemo on Friday.
On a good note. He has had a lot of energy lately. We were able to hit ChuckE Cheese and he got to see his sisters play basketball over the weekend. We also got his eyes checked along with his sisters and myself. All three kids did great. Shawn does have a stigmatism, but they don’t want to do anything about it right now. Thank goodness. I need a small prescription. Haven’t filled it yet though. Shawn picked out some fruits (blueberries and strawberries) while at Sams Club. I won’t deny him food! LOL. He needs to gain some weight.
We are participating in the St. Baldricks event at 4th Street Live on March 15th. Shawn’s Dad, a uncle or two, and one of his cousins are going to shave their heads in Shawn’s honor. If you would like to participate, please see Shawn’s page http://www.stbaldricks.org/kids/kid_info.php?KidID=1857 , or email me at sanyab@insightbb.com
One more thing… we just found out tonight that one of Shawn’s little buddies from the hospital and clinic relapsed. He has been diagnosed with AML. Please pray for him and his family. David is a fighter. He is 5 years old as well.
Thanks for the reading this far!
Lots of Love,
