Shawn Bowen’s BlogHelp us help him beat Leukemia!

Just a quick update. Shawn goes back tomorrow (Feb. 18th) for his bone marrow biopsy, chemo and spinal. Praying for the MRD to be less than it was last time (0.07). He has been feeling great and enjoying his time off. He hasn’t been as sick as he has been so that is a nice change. I will update after tomorrow!

Have a great week everyone!

Sanya

P.S.  We have been using a Caringbridge site as well.  We have a lot of families that we have met that are going through the same thing or similar to what Shawn is going through.  So we keep in contact with then that way.  I usually update both sites with the same stuff… but just wanted to let you know it was out there.  Here is the link: http://www.caringbridge.org/visit/shawnbowen

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Sorry for the delay in updating. I took Shawn in to see Dr. Raj on Tuesday as he is still having trouble with vomiting and has broken out with a rash on both legs. Dr. thinks they are both chemo related. The Zantac seems to be helping. Hoping it stays that way.

Dr. Raj said that he was glad about the MRD results (0.014) and talked with the study chair. They both agree they really don’t know what to do with the results. They just don’t have the data or studies to back it up. So he is emailing other oncologist through out the country and will let me know what they decide to do. Most likely won’t hear anything until the next bone marrow which will be done about 4 weeks after the next round of chemo is started. He should start that round mid March. Dr. Raj also said that Shawn is on some pretty heavy duty chemo as it is.

As usual… a constant roller coaster. Will update as we find more out. Shawn goes back for more chemo on Friday.

On a good note. He has had a lot of energy lately. We were able to hit ChuckE Cheese and he got to see his sisters play basketball over the weekend. We also got his eyes checked along with his sisters and myself. All three kids did great. Shawn does have a stigmatism, but they don’t want to do anything about it right now. Thank goodness. I need a small prescription. Haven’t filled it yet though. Shawn picked out some fruits (blueberries and strawberries) while at Sams Club. I won’t deny him food! LOL. He needs to gain some weight.

We are participating in the St. Baldricks event at 4th Street Live on March 15th. Shawn’s Dad, a uncle or two, and one of his cousins are going to shave their heads in Shawn’s honor. If you would like to participate, please see Shawn’s page http://www.stbaldricks.org/kids/kid_info.php?KidID=1857 , or email me at sanyab@insightbb.com

One more thing… we just found out tonight that one of Shawn’s little buddies from the hospital and clinic relapsed. He has been diagnosed with AML. Please pray for him and his family. David is a fighter. He is 5 years old as well.

Thanks for the reading this far!

Lots of Love,

Sanya альбома лолиты прощай оружие

Hello again!

Shawn had his clinic appointment today and his counts were barely high enough (760) to have his bone marrow biopsy, lumbar puncture and chemo today. We had thought he wasn’t going to have any of it done because his counts have been rising so slowly. There was some debate among the doctors and nurse practitioner, but they finally decided that they should proceed. So, we spent a good part of the day at the clinic and hospital. I am hoping he doesn’t have many side effects. We should have the results of his bone marrow biopsy (they send it out) by Friday. I am hesitant as to what I want the test to reveal. At first I didn’t want him to have a bone marrow transplant. However I was told by a friend of ours who has a daughter who will be having transplant that they will be done with chemotherapy. So that prompted me to ask one of the nurses at the clinic and she confirmed that. So, would it be better for him to have transplant and be done with this disease?

But there is a down side to that I suppose. The recovery is long and often there are complications and set backs.

On the other hand, should we continue with the chemotherapy? 3 years and 3 more months of this??

I have placed it in the Lord’s hands and I know that he is in control. You know me though! I am always worrying or trying to figure things out.

Please just pray that our doctors weigh everything and that we are heading in the right direction. Whatever that may be!

Tomorrow Shawn goes back for more chemo (leg shots) and then he will be off for 10 days. I know tomorrow will be rough for him because these shots hurt and he often gets sick from them. I just hope he feels fine the 10 days he is off!!

Have a great week everyone!

Sanya

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Shawn had a clinic appointment this morning. His counts were at 1500 (they were 1200 on Friday after lots of throwing up), and everything number wise looked great. Shawn is vomiting a lot lately. So I took him in on Friday and he was given IV fluids and IV meds to help with the vomiting. It hasn’t really helped. He got through Saturday without throwing up, but started again yesterday. Then today he got another round of chemotherapy and as soon as she started giving him the methotrexate he got sick right after. I am wondering if he is just getting too high of a dose and his little body just can’t handle it. I am going to ask at his next appointment. He goes back to the hospital (OMO) for more chemo… the dreaded leg shots!! He ALWAYS gets sick after it so I am not looking forward to this rest of the week.

My little man is such a fighter though! So brave and strong.

Thank you all for your thoughts and prayers.

We love you all!

Sanya

Just a quick update. Shawn had his second dose of chemo today at OMO. He did well. It was the PEG (leg shots) and he usually gets pretty ill after having it so I expect he will have some vomiting in the next day or so. Two things that I forgot to mention yesterday was that he has started a new phase of his chemotherapy *AUGMENTED INTERM MAITINENCE* and 2nd is that he has chemo every 9-10 days instead of every week. This new phase will take us through March and possibly April if his bone marrow biopsy comes back clean.

So we won’t be back in the clinic and OMO until the 29th and I will update again once we get his bone marrow biopsy results!

Lots of Love,

Sanya